Sep 29, 2024
116 Embracing the Role of a Caregiver: Tips and Techniques with Lili Udell Fiore
In episode 116 of 'Hospice Explained,' host Marie Betcher RN interviews Lili Udell Fiore, author of 'Lili's Caregiver's Guide.' Lili shares her personal journey of caregiving for her aunt and parents, providing valuable insights on managing grief, organizing caregiving tasks, and improving the quality of life for loved ones. Lili, also a death doula, offers practical advice on dealing with dementia, understanding the importance of self-care, and navigating the responsibilities of a caregiver. She emphasizes the importance of recognizing changes in loved ones, understanding their needs, and ensuring their end-of-life wishes are honored. Additionally, Lili discusses the significance of understanding and addressing grief, especially in children, and the role of hospice care and chaplain support in the final stages of life. This episode is filled with actionable tips and resources for caregivers and those supporting loved ones through end-of-life care.
00:00 Introduction to Hospice Explained
00:37 Meet Lili Udell Fiore: Author and Caregiver
00:59 Lili's Personal Caregiving Journey
01:32 Insights on Grief and Living Again
02:11 Welcome Lili: Author and End of Life Doula
02:23 Lili's Caregiving Tips and Experiences
08:50 Understanding the Five Love Languages
10:34 Caregiving for Dementia: Tips and Stories
16:16 Practical Tips for Home Caregivers
18:13 Becoming a Death Doula
19:44 Organizing Caregiving with Tracking Forms
21:42 Sensory Care Method for Joyful Living
23:17 Remembering Lili's Father: A Legacy of Care
24:48 The Value of Perspective in Caregiving
25:27 Understanding and Validating Emotions
26:42 Engaging with Loved Ones Through Sensory Cues
29:04 The Importance of Hospice and Palliative Care
32:55 Navigating Grief and Loss
38:41 Communicating with Children About Death
43:31 Final Thoughts and Practical Advice
https://www.liliudellfiore.com/
Book On Amazon: https://a.co/d/4hzMjCy
Finding a Hospice Agency
1. You can use Medicare.gov to help find a hospice agency,
2. choose Find provider
3. Choose Hospice
4. then add your zip code
This should be a list of Hospice Agencies local to you or your loved one.
Hospice Explained Affiliates & Contact Information
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at the Buy me a Coffee link
https://www.buymeacoffee.com/Hospice
Kacie Gikonyo's Death Doula School
https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/
Affilitate for the Caregiving Years Training
Academy:
https://www.careyearsacademy.com/ref/1096/
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The Death Deck and the E*O*L deck:
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Marie's
Contact
Marie@HospiceExplained.com
www.HospiceExplained.com